3 things to know



Photos:


Kamdyn "Kammy" Hiner


Kammy’s Kause returns to Fortville Friday and Saturday at the American Legion Campground on Ind. 13. The event is a two-day music festival that raises funds for the 4p- Support Group, a nonprofit for those living with and affected by 4p-, a genetic disorder.

 

A decade of aid

 This is the 11th year for Kammy’s Kause, an annual fundraiser organized by Jared Hiner of Fortville in honor of his daughter Kamdyn (above), who was diagnosed with 4p-, a disease that causes slow-growth developmental delays.

 

Funds go for support, research

The 4p- Support Group focuses the spotlight on the genetic disorder. Money raised goes toward support services for families and to facilitate meetings of scientists.

 

How rare is this?

4p-, or Wolf-Hirschhorn Syndrome, is a genetic disorder. Frequency of the disease is estimated to be 1 in 50,000 live births. Only 20 percent of the cases are a result of one parent being a carrier. The remaining cases are rare chance occurrences.

Source: 4p-supportgroup.org.

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